After last night's CT scan, the doctors have decided that Kyara needs a tube placed in the area where fluid is collecting. It is in the middle of her chest, back by her back. They believe this fluid has a lot of bacteria in it and perhaps this is a reason she is staying sick. Hopefully, by draining this off, she can get back on the road to recovery. They will place a tube, much like the chest tube, through her back and directly into the space where the fluid is. The doctors will use CT scans to make sure they are placing it in exactly the right spot. They are also considering REMOVING her left chest tube. It is not draining, so they are talking about removing it while she is down there. I hope they do, as long as she is ready for it to be gone!
The swelling in her face and neck continue to get worse. Both of her eyes are now completely swollen shut and her skin is pulled tight with the pockets of air and fluid that is accumulating. Again and again the doctors say this is ugly to look at, but it poses no danger to her and will go away on its own.
Kyara's vital signs are still very stable and the rest of her body is looking good. Amazingly, the doctors are still very optimistic about her progress. They have informed me that most kids are here for 6 weeks after this surgery. So much for 10 days! I just wish they had been more up front with the timetable to begin with. But, then again, perhaps we hear what we want to hear. When Dr. Coran said 10 days if things go perfectly, I imagined that things would go perfectly. Why wouldn't they? I am not in any hurry, though, I just want Kyara to be safe, healthy, and happy.
*** Kyara just got back (5:15pm). They were able to get the tube in place and remove 80ml of slimy stuff from the area. They are sending it to the lab for cultures. We will get results in 24-48 hours. They have also removed the left chest tube, so that is good. And, they have decreased one of her pressures for her breathing tube, so that is putting us one step closer to getting it out! ***
8 comments:
As hard as all this is for me to read about Kyara, I know it must be almost impossible for you, Genie, to go through. Take heart and hold strong. "This too shall pass". Next summer when we are all at JoAn and Bob's pool, this will be but a faint memory.
We continue to have you all in our hearts!
Love,
Carolyn
Keep working hard yall. We are thinking of you! Much love and respect,
The Vaughn's
Tomorrow will be a better day, I still think she is going to make it and soon and be a little funny as always, thus the doctors said, this is the normal procedures for this type of operation, let's keep our hopes very high, my heart and thoughts are always with all of you,
I know it must be so hard to see her like this but often times things seem worse before they get better. I truly believe that the body has an incredible ability to heal itself.
You are all in out thoughts and prayers! Kyara's friend Ryan and the Dennard family.
Keep fighting Kyara!!!!!!!!!!!!!!
Mom continue to be strong and take care of yourself.
You are an amazing mother, Genie, and such an inspiration to me! Your maturity, patience, positivity, strength, and huge heart speak to us all and your daughters and husband are so very blessed to have you. We are praying that, despite these setbacks, each new day will bring more healing and comfort than the one before. God will see Kyara and your family through this with renewed strength, love, and joy! Praying that tonight is a restful one for you and Kyara.
Love,
Lisa, Kevin, and Adelyn
I am so amazed at how strong you are Kyara, and how strong you Mom is! I continue to pray and check up on you. Thanks for posting and keeping us all updated!
Much love,
Sherry, RN
Genie - Aileen and I are keeping you, Kyara & the rest of the family in our thoughts & prayers. We wish you all the best of luck with this difficult process and for a full & speedy recovery.
David & Aileen Ruff
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