Today has been a day of tests. Kyara had another swallow test this morning because the doctors were not happy with how little they could see yesterday. Well, the test this morning did not go so well. They were not able to get a tube into her stomach (which they needed). They also decided that the NG tube that they thought was in the stomach yesterday, was actually not placed in the stomach. After attempting to place the tube for 45 minutes, the radiologist felt uncomfortable continuing (Kyara as vomiting each time they tried) and stopped the procedure. So now what? This afternoon, after meeting and discussing Kyara's case, the doctors decided to do a CT scan. This is for preparation to do a scope of her "esophagus" tomorrow. The doctors want to visualize her esophageal leak and her stomach. Kyara is also having a problem with spiking high fevers at night. She is hitting 104F, and her heart rate is skyrocketing. This is concerning to the docs because they are not sure why she getting these fevers. Also, the pocket of fluid that they have been draining may have moved to a new space. If this is the case, the doctors will have to put in a new drain to get rid of this fluid. I assume they will be able to see this on the CT scan they did today.
Yes, today has been a day of tests, and not just for Kyara. I am getting tested emotionally as well. Just when we feel like things are getting so much better, we are running into some potentially big complications. Why can't things go smoother? All I can do is sit back, trust the doctors and their skills and knowledge and pray that everything will right itself. I have been told that this is a very complicated surgery, and many kids have a hard time, but in the long run, it is extremely successful. With a 95% success rate, I have faith that Kyara will be fine once we get through these rough patches.
9 comments:
I am sorry that you are having to go through this. Please know that you and yours are loved and lifted up through it all. Lana, Russell, Caitlin, Savannah and Alexander
Hang in there! You guys will be through this in no time!
You indeed will get through this and all will be much stonger for it. Keep your focus and strength and know that your army of prayer down here in chilly ATL is still working hard for you all. Let us know if you need anything!
The Vaughn's
You are in my prayers. Hang in there and know we are all sending hugs your way. Love to you - Marcia
We'll keep praying!! Sounds like you all need it! Love you all and miss you all.
The Lopers
I am so sad to hear what a hard day little Kyara had to go through yesterday and how stressful of a day for you! Hang in there and keep the faith. God is with you guys.
Love
The Cambas Family
Genie -
I am amazed by the strength you have exhibited throughout this whole ordeal. Continue to be strong for that little girl. She is going to make it through and the five of you are going to have a wonderful Xmas at home!
Genie, I am so impressed with your strength and your ability to stay strong for your family. You are an excellent role model, not just for your girls, but for all of us.
Please know that you are in my thoughts and I pray for you to continue to be able to dig deep for strength.
-Kelly
Kyara,
You are so strong and beautiful. While things are hard now, keep thinking of the love so many people have for you and how many new fun memories you will make when you get home with your family. Stay strong! You are amazing! It won't be long now till we all get to see pictures of your beautiful smile!
-Kelly
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