We have had a setback in Kyara's recovery. We did a swallow study on Wednesday so that Dr. Meyers could prepare for Kyara's dilation on Friday. He wanted to see her anatomy and have a feel for what he would be looking at when he went in. Well, the swallow study looked odd. It looked to me like there was a leak again. The fluid would go down her throat then it took two paths. Most went into the stomach, but a little went out a different way. Of course, I flipped out! It turned out to be an out pouching of the esophagus where the leak used to be. It is contained and fluid comes back out of it and goes into the stomach where it is supposed to go. We waited most of the afternoon at the hospital while images were sent to Michigan for Dr. Coran to see and for he and Dr. Meyers to discuss the best course of action. They decided Dr. Meyers would procede with the dilatation on Friday as planned and since she does not have any symptoms of infection.
So, today Dr. Meyers dilated her. Unfortunately there was some complications with the procedure and Dr. Meyers was unable to dilated the pseudoesophagus. Because of these complications, the best thing for Kyara is for us to go back up to Michigan and have Dr. Coran dilate her.
I am devasted to have to go back. But I just want the best for Kyara. I am frustrated that things are not going smoother. I would like to know why Kyara seems to develop all of the complications that are so unlikely to happen. Dr. Coran said that the leak she had developed at the beginning was like a 1% chance of happening. This out-pouching has only occurred to 2 other of Dr. Coran's patients. WHY Kyara? She has been through enough!!
Now, I have to take a deep breath and remind myself that this is not so bad. She is healthy, she is not showing signs of infection, and she WILL be ok. The plan is to go up on Tuesday, have the dilatation on Wednesday, hang out on Thursday, and come home Friday. I hope it all goes according to plan...
12 comments:
I'll be praying for you that all goes well and that this is just a bump. Lots of love! The Lanes
Hang in there, they say everything happens for a reason. Let me know if you need any help with Skylar - would love to be able to help.
Michelle
Sorry about this new complication, I am hopping that everything goes well in Michigan and do not have to stay much longer.
Big kiss to the girls.
Love
Genie...We will be praying for you guys! I am so sad you are having to go back!! We love you!
Missy
You know you guys are in our prayers. We are so disappointed that she has had this small bump when she has been doing so well. We have LOVED having her back in class where she belongs, but we will be patiently and anxiously awaiting her return.
We are so thankful that the doctors do know what this is so that it too can be taken care of quickly. You guys are on top of everything, and we know Kyara is going to be so STRONG very soon as a result.
We love you guys. Have a safe trip and let us know how we can help should you need anything! Give Kyara a big hug from us and tell her we love her very much!
Mrs. Carlisle and Mrs. Laurie
Please know you guys continue to be in our prayers. We will pray for a safe travel and a speedy return. She is in good hands!!
The Brandons
Hey there!! I am so sorry about this disappointment for you guys! Poor little Kyara! I will be at work tue, wed & thur days and would love to see you guys. take care, drive safe and bring those boots!! Tedra
Yup...I guess there was a reason that you were on my mind today. I'm so sorry that you need to go back to snowy Michigan. BUMMER. The Schmalz's will most definitely be praying for you guys as you make the trip, and for a quick easy answer.
Take Care,
Cristen Schmalz
So sorry to hear about this latest bump. I can't imagine your frustration and disappointment. We will be praying for you all and I know the final results are going to be amazing and life altering for Kyara. She will come through this better than ever and she will be soooo thankful for all you and the family have done for her throughout this ordeal. Let me know if there is anything I can do to help and most importantly, keep the faith.
Safe travels and speedy recovery!!!!
Anne Henley
You all are in my prayers. God is so good, and He has Kyara in his hands.
"And my God will meet all your needs according to his glorious riches in Christ Jesus."
Philippians 4:19
You are certainly in all our thoughts and prayers. She is a little tiger and will get through it but I know it is taking a million years to you....keep hanging in there. Laura
Genie and Gunars, so sorry Kyara is having a set back and you have to return to Michigan. Travel safely and know you are in our prayers. Kyara is so strong and will be completely healthy soon. We love you all. It was so good to see you at Christmas. Uncle Bill and Aunt Joanne
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