Kyara Dzenis

Kyara Dzenis

Friday, July 3, 2009

Happy 4th of July!

I may be a little premature, but I don't know if I will have a chance to get to the computer tomorrow or not, so... Happy 4th!

This week has been busy! There have been ups and downs. I guess that is typical of any family life, though.

Monday, the girls and I headed to Columbus, Ga to see my grandmother and to return her van. We used the BIG conversion van to go to the beach, and I don't know what we would have done wtithout it! By the time we got Kyara's wheelchair and all of her other supplies in the van, we were lucky to be able to squeeze everyone in. There is no way we could have done it in my minivan. So, the conversion van was perfect! I was trying to get to Columbus early so that I could spend the day with the girls and Nannie (Bunny was there visiting, too), but I wasn't able to get out of the house until 11:30. Potty, changing diapers, getting medications together, changing clothes 2-3 times over, etc. really slowed us down. I also wanted to get the van cleaned before we took it back. Did you know conversion vans do NOT fit in car washes. After the third place, I finally said "Forget it!" I vacuumed out all of the sand and dirt, wiped down the inside and decided the tan van was in good shape. I enjoyed the 2 hours we finally got to spend with Nannie, just wish it had been longer.

Tuesday Kyara had therapy. Allen and Missy were sweet enough to watch Skylar and Kassey while Kyara and I went to therapy. We then all went to the pool for a while. The girls had a great time. I think Kyara may have drunk have the pool, I seemed to have a hard time keeping her face out of the water. No harm, no foul, right? I also had a negative experience at Wal-Mart. I was there with Skylar, Kyara, and Kassey. Skylar pushed Kyara in the wheelchair and I had the buggie. I was surprised at the mouth open, eyes bulging, stares we got as we did our shopping. Not just from kids, but from adults, too. After a while, it really started to get on my nerves. Mind you, Kyara was fussing some, but still. And that wasn't even the bad part. While I was leaving I met a lady who also has a child in a wheelchair. We talked as we were heading out to our cars and stopped outside the front entrance (out of the way of the doors) to finish our conversation. While we were there (only about 5 mins) the Wal-Mart "greeter" sent 2 customers out to tell us to move because my child (Kyara) is crying. Then she came out and told me I needed to move because she (Kyara) was crying and not comfortable. WHAT?! I told her that I was Kyara's mother and that I know how to take care of her. But thank you very much for your concern. - Kyara cries. She vocalizes ALOT. It can, to an outsider, seem like she is in pain. I understand that, but I think the "greeter" overstep her position. And to be honest, it ticked me off.

Wednesday, Skylar and I went to Six Flags with Uncle Allen and Curtis (my nephew). We had fun. I am pretty sure we went on every ride that Skylar and Curtis were tall enough for except the train that ran around the park. By the end of the night, I was exhausted. I really enjoy spending that extra time with Skylar, though. I think that she gets lost in the shuffle sometimes. She has been so good about helping me at home...When I am elbow deep in poop, she comes running with the garbage bag to put it all in. My mom (Bunny) stayed with Kyara and Kassey and had a few of her friends come over to the house to help with the girls. Thank you so much, Ms. Martin and Ms. Grove!

Thursday was errand day. No fun there! Just running from place to place.

Today (Friday) Gunars had the day off. We went to Kyara's therapy together and Kyara is doing some tasting. We got the go ahead to try some tasting at home, too, to encourage her to chew and begin trying to eat. That is exciting. Otherwise, we cleaned house and enjoyed being with the girls.

Tomorrow is parade, pizza, and fireworks! I am looking forward to a fun day! Have a safe and happy 4th!

7 comments:

Anonymous said...

Many times people fail to show compassion for those who "bother" them. People can be so selfish and self-centered, only concerned with their own comfort. Makes me more concerned for them, they are the ones who are in desperate need of a heart. With that said, I am glad that you are venturing out, even though it could take all day to do it! We will be in town Monday afternoon and functioning by Tuesday with the time difference. I can't wait to see all of you and stay to help too! I will call. Love from Spokane!!

The Lanes said...

Happy 4th of July to you guys! It is great that you are doing so well and are able to venture out. I can see where the reactions and stares can get to be annoying...just remember those people don't understand. Lots of prayers and love...Lana

ireina said...

I totally understand the whole walmart thing, when Paul was a baby I had a lady literally ask me what he have dangling from his nose and why, like if it was any of her business. Some people have no education what so ever. Sorry that happened to you but don't let that discourage you from living your life, Kyara is your daughter and that is who she is right now so everybody else will have to get over it. I am glad things are going good otherwise and therapies well. Hopefully you all can come to the party on Sat we are all looking forward to it. Our prayers continue for all of you.
God Bless,
Ivette

Anonymous said...

I'm so glad you had a good time at the beach and that you are getting out and about at home too. It's too bad that people are so ignorant and rude sometimes. Know that there are lots of us out there who support you fully and who know that you know what's best for your family...I wish we could be there to intercept the rude ones before they show themselves. We're looking forward to seeing you at Karate again soon!

The Lopers

Anonymous said...

what bugs me is people smoking outside the entrance at wal-mart but nobody tells them to leave.i would have asked to see the manager,sometimes it works wonders and sometimes not,and as far as people looking just think of her as a star and don't let it bother you too much it's just human nature to look but some folks are just plain rude and a look turns into a stare but just hold your head up for your little star.love and prayers from carrollton,ga.

Unknown said...

Don't be to discouraged - as a grandmother of a mentally challenged granddaugther I too have seen the stares, whispers, etc. - do what I do -- ask if they wish to know how the child ended up this way and how we live with the challenges and the love from a challenged family member -- do it on a daily basis -- let me know if you need someone to talk to-- been there done that for 11+ years now --

Linda Sabala said...

Boy, Genie, sometimes there's just no way to explain some people! I do think it's helpful to speak with the manager in a situation like this. Retraining would have been a positive thing for that Greeter. I'll bet you aren't the only family that has been upset by that particular WalMart employee, and his/her supervisor needs to know that. On the positive side, good for you for getting Kyara out and into society! I can't even imagine how much work that takes, but she will do well with the added stimulation and the contact with people who DO care. Love and prayers, Zachy's Grandma, Linda