Back in the Gym Again

It is Thursday and we are finally back in the gym again. This is good for all of us. I like seeing Kyara working in the gym and getting out of the room. I think the walls start to close down on us when we stay in the room for too long. With that being said, I am working on getting myself better, so I have been letting my parents and Luz Estela stay with Kyara more. I am trying to get more rest, and revive my engine for the next haul before we get to take Kyara home.

The rehab doctors have decided to botox Kyara's forearms, elbows, and flexors of her fingers tomorrow. She is still very tight, and the baclofen pump is not having the effect we had hoped for in the arm area. Her legs are looking pretty good. I noticed more stiffness in her left leg today when I tried to bend her knees, but they are still adjusting the rate of the pump.

Today Kyara had a good day in therapy. She was "kicking" a ball on command. She would kick her leg out 2-3 inches. She did better with her left leg than her right, but it was still good. She worked on head control and rolling over. Both of these things are more difficult now for a number of reasons (I am guessing, but they make sense to me!) First off, she has been in bed, unable to be moved for a week. Also, the baclofen pump takes away alot of her tone. She had been using the tone to assist her movements, so with the tone gone, it just shows how weak her muscles really are. Time for bodybuilding! In speech today she used to the switch button to let the therapist know she had a dirty diaper. Lindsay had a big button that would say "yes" when you push it. She asked Kyara a number of questions because Kyara was fussy and she was trying to figure out what was wrong. After a few questions with no response, Bunny said "Ask about her diaper." So Lindsay asked, and Kyara pressed the button. Sure enough, she had pooped and peed. So yea! She was letting them know what was wrong.

Overall, I am glad to get back into rehab. I appreciate everyone's concern for Kyara and for the rest of our family. We are very fortunate to have the love and support of so many. It has really meant alot, especially for the last week. I praise God for the progress Kyara has made and look forward to seeing more steps in the positive direction.