As the title implies, tomorrow we will go down to radiology for anothre swallow study at 1:00 pm. The doctors will have Kyara drink some contrast while lying on her back under this huge machine and we will watch on the monitor to see where the contrast goes. If the leak is healed, it will go straight down. If there is still a leak, we will be able to see most of the contrast go straight down and some go out to the side and create a dark "shadow" next to her "esophagus." Last week I could tell right away that the leak was still there because it looked like a small balloon next to her esophagus. I am praying that the leak will be sealed and we can begin the next phase...eating.
Complication just arose while was writing the blog. Kyara's NJ tube (feeding tube) is either crimped or clogged and not letting feeds get into her body. We (the nurses and I) have tried different strategies to unclog, but have not been successful. The nurse, Sam, is paging the doctors right now to let them know what is happening. I am guessing if it is crimped or they can't get it unclogged, they will have to replace it (back to the Operating Room). I am SO ready for Kyara to get better!!!!
5 comments:
Things will go well for you tomorrow. The new setback is just that...a small setback. Stay strong. Her pictures look great! Certain progress!
The Vaughn's
Please know that I am praying for you and lifting the whole family up.
Lana
Genie
Hope Kyara has a great day toaday and the swallowing test goes great(no leak). Please tell her that I said hello and I miss her!
Misty Evans
Our continued thoughts and prayers are with y'all! Good luck on the swallow study! Kyara looks wonderful in the pictures.
Take care,
Lorri, Paul, Matthew and Megan Hammond
We're still praying for no leaks, you'll get past this! Have you thought about having Kyara draw pictures and dictate to you her take on all of this? (the best parts and even the worst parts) She may want to look back on this one day and see what her 4 year-old mind was thinking at the time. Your blogs are so great to get your point of view and feelings, etc. Can't wait to see you all!
The Lopers
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