Today is 4 weeks since Kyara's surgery. Not quite the 10-14 days we expected, but we are so thrilled with the progress Kyara is making. The time we spend here is not that important. As long as Kyara heals and has a successful surgery, I am thrilled. The doctors and the nurses here have been great! We are very blessed to have found Dr. Coran and his staff to perform this surgery for Kyara.
Today physical therapy came in to see Kyara. They are working to help her get her strength back. Dan is the physical therapist that we saw today. Kyara was a bit resistant to Dan at first, but eventually he won her over. Dan had Kyara up out of bed. He helped her get into a wheelchair that has a very low back so that she could work on sitting by herself. He is bringing some fun toys for her to play with tomorrow. We are also blowing lots of bubbles to help her lungs regain some strength and to help get some of the gunk out.
The doctors have also decided to switch most of Kyara's medications from IV form to oral (or in her case: thru her feeding tube in her nose). They will continue to wean her medications each day, while still watching for signs of withdrawal. The doctors have some "rescue" IV drugs ordered in case she shows any signs of withdrawal. If she tolerates the change in medications from IV to oral ok, we may get out of the ICU on Wednesday. This is going to be a big day because we will also be doing another swallow study on Wednesday to see if the leak is still present. If there is no sign of a leak, we will slowly start working on feeding by mouth. If there is ANY evidence of the leak, we will wait for another couple days to a week and do another swallow study. I pray the leak is gone.
14 comments:
Girl we are on our knees praying with you! We are so proud of the strides Kyara is making every day. Olivia was glad to see Skylar today at school. She said she didn't even look sleepy (I had told her how long of a trip it was yesterday).
Looking forward to hearing more great news tomorrow!
Love - Doug, Marcia, Evan and Olivia
Thanks for all the updates and especially this one. Kyara looks absolutely beautiful and we're very proud of her for working hard to get her strength back. Please tell her to blow some big bubbles for Uncle John and I. Love you all and remember you're always in our thoughts and prayers.
One more good news,hurrayyyyyyy, this is fantastic, she looks very good, ready to do everything by herself as Kyara did before her trip to Michigan.
Big Kiss
Love
What wonderful news..I know you are excited! Know that you all are in our thoughts and prayers!!!Lana, Russell, Caitlin, Savannah, and Alexander
Genie this is such great news!!! We are praying for no leaks... praying that Kyara gets her strength back sooner than later... and hoping that you get to spend New years in Atlanta.... This is really great news!! So happy for you!
Oh what wodnerful news! Kyara you are looking just beautiful! We are so proud of you. Sensei sends you a HIGH 5!!!!!!!!!!!!
Love the Cambas family
Pyhsical,
If you can read it and kind of sing as the next line in your blog topic it goes along with the song. Um Yeah.
Way to go Kyara! She laughs at baby steps. She is going to be such a fireball when she gets back.
Hope all goes well,
Matt
GREAT NEWS!!! YIPPEE!! I am so excited to see Kyara out of the bed. She has really turned the corner and has started her uphill climb to getting back to Sharpsburg. My prayers are for her to have nothing but positive tests and to get out of the ICU. I know Genie you must be beside yourself to hear good news for a change. I will continue to pray for better and brighter days ahead. Give Kyara a BIG hug and kiss from Mrs. Laurie.
Mrs. Carlisle and I saw Skylar and her missing tooth this morning.
We will be waiting to hear more good news to come.
Love to all,
Mrs. Laurie
Amazing...We're still praying for you guys! Like I always tell my kids...slow and steady wins the race. Keep going slow and steady Kyara. The Schmalz's (and Nikki) in Iowa are praying for you all!
Cristen & Gary (kids too)
Genie, What wonderful news!!!I am so glad Kyara is out of bed and beginning her physical therapy; it won't be long until you guys are home!!! This is all GREAT news and I look forward to hearing more. All of you are in our prayers!!
Love to all and please give Kyara a HUGE HUG:)
Nurse Misty
Halleluiah!! :)
It must feel good to get good news! We hope and pray it keeps on coming.
So glad you were all together for Turkey week. Enjoyed reading about the pool excursion and the walk in the park, too.
Give Kyara hugs from Sharpsburg!
Love,
Lorri, Paul, Matthew, and Megan
Genie,
Wondering how physical therapy went today?? Tell my sweet little Kyara that I said hello and I miss her very much!!Love to all Nurse Misty
hey kyara this is olivia nurse Misty daughter. we have been praying for you every night.GOD did a miracle for me when i was born and now he is doing a miracle for you:)I just wanted u to know thatGOD is good.
your neighbor olivia evans
ps. my mommy loves you:)
It is such a GREAT day! To see Kyara out of bed is absolutely amazing! I cannot wait to see the video of her running down the hospital halls - you know it's coming. She is going to light that PT's world on fire, when she shows all of them what she can do! Give her a big hug from Ms. Michelle.
hey Kyara how are you doing my whole class misses you and Skylar really misses you and I can't beleave you are getting better so fast. Love Michayla
You go, girl! You are so such a fighter!!! We can't wait to have you back home! You continue to be in our prayers every day! Hugs and kisses from Curtis, Ansley, Zoe, Preston, Aunt Missy & Uncle Allen
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