Kyara Dzenis

Kyara Dzenis

Monday, November 3, 2008

Kyara is in ICU and doing well



Dr. Coran said that everything went very well, better than normal. The only big issue was that the esophagus was stuck to the Aorta. He was a little nervous about separating the the two, but there were no complications, she did not bleed. An esophagus is normally stretchy, like a rubber band. In Kyara's case it was like a rope, very rigid. It was in truly bad shape. The surgery only took 3 hours, they can last 5 to 6 hours. In the picture you can see she has one tube coming out of her nose (a nasogastric or NG tube). This will "supplement" her feeding until she is fully recovered. She should be able to eat foods through her mouth in the near future. There is another tube coming out of her mouth (an endotracheal or ET tube). This does the breathing for Kyara. The Dr's want Kyara's body to concentrate on recovering, so even the breathing is done by a machine at this point. The lungs are also usually very weak in patients with this kind of surgery. In Kyara's case, right after the surgery, she was already breathing very well. They considered letting her breathe on her own. This has never been a consideration in previous patients, but Kyara's lungs appear to be so strong that they thought about it. Although they decided against removing it, the strength of Kyara's lungs would not come as a surprise to those that know Kyara well. Her lung capacity is truly extraordinary. She can scream (when crying) like nobody in the Western Hemisphere. If you upset Kyara by looking at her funny she will scream like if somebody chopped her finger off. Even when talking, her volume is a few decibels higher than normal. :)

Kyara will be in ICU for a couple of days, we don't know exactly how long yet. Dr. Coran is going to come by tomorrow to see her and we will find out more then. Kyara will be in ICU until Dr. Coran feels it is safe to remove her endotracheal (breathing) tube. Once we leave the ICU we will go back to the main recovery unit. We are guessing she will be there for another week-10 days. Again we are guessing. We are still staying at the Holiday Inn, the Ronald McDonald house has not had any openings, yet, but the caseworker here at the hospital is working on that for us. Many people have asked about the address...we are moving around so much right now, we don't know where we will be from one night to the next. If we get in the Ronald McDonald house, that might be the best address to give out. We will let you know, sorry for the lack of information.

A little note on our brave Kyara: Once in the room, while heavily sedated, apparently Kyara did sit up and try to take her tube out of her mouth. She is supposed to be sleeping (heavily sedated) for the next several days. They had to restrain her and give her some more medication. They commented how strong Kyara must be. They have no idea...

16 comments:

Anonymous said...

This has been wonderful news! We have waited and had the website up all day. I am sooooo glad that everything has gone as planned and I hope that things continue to do so. We have truly missed her in class today and will until she returns. We can't wait to hear from Kyara herself but I know that God's hands on her and helping her heal. I will be waiting for your next update. Give her a hug and kiss from me. She is truly a strong little girl.

Anonymous said...

It is so good to see the surgery went well. We are thinking about you Kyara! Stay strong and best wishes to a speedy recovery.

A, Jason & Addy

Anonymous said...

My name is Marilyn and my son Kyle is in Pre-K with Kyara. We are very happy and encouraged by your lastest update. It sounds like Kyara is an extremely strong fighter. Please keep us updated. We will be thinking about you guys.

Anonymous said...

I have followed your postings all day curious and praying for your family. I have never met Kyara at Willis Road, but I am eagerly waiting her return to meet her. She is so brave and I would love to tell her that. I am so thankful for Kyara being so strong, as well as you. My family and I will continue to pray for your family.

Mrs. Allwine

Anonymous said...

Genie,
I pray that God will continue to watch over your little girl and your family during this recovery time. You are all in my thoughts and prayers.
Denyel

Anonymous said...

Guys, this has been a great blog to follow and I am SO HAPPY that Kyara did well! I am not surprised, she comes from strong genes! This is great news... Congratulations again.

Tina and Carlos

Anonymous said...

We're so happy that you are out of surgery snd that it went well. We miss you, Sissy! Hurry home and get well soon!
Love,
Skylar, Kassey, Mommy, Daddy, Bunny, and Pop

Anonymous said...

Good Night and Sweet dreams Kyara! We are so excited to see how well you are doing. You are very brave and strong, and we are all proud of you. We will check on you again in the morning. For now, we are praying for a restful night for you and your sweet family. Thanks so much for keeping us all informed.

Love,
Jeremy, Josette, Jaidyn, Jilleyn, and Jensyn Carlisle

Patty C. said...

We are thrilled to hear the news. Tina has done a great job keeping us up to date. Kyara -- and all of you -- are in our thoughts and prayers. Best wishes for a speedy recovery!

Patty Caballero

Anonymous said...

I am so glad to hear that Kyara is doing well. My dad spoke to your dad earlier today. I just wanted you to know that the entire Rawlings family was thinking of you guys.

Jen

Zizi, Aunt Jeni and Tristan said...

Hip hip hooray for Kyara! We knew you would be a fighter through the surgery. You should earn quadruple black belts for what you have accomplished! We wish you a speedy recovery and look forward to seeing you home very soon!!
Mwah!

Anonymous said...

I am so glad that Kyara came through the surgery fine. I will continue to hold all of you up in my prayers. You are a very special family!

Ms. Dee <><

Anonymous said...

This is wonderful news! I know that Kyara is a very strong little girl! She is a fighter. We can't wait to see her and give her a big hug!

Love,
Ms. Michelle, Mitchell, Matthew and Michayla

heathervoet said...

We're so happy to hear the great news. It's no surprise that Kyara is still "amazing" the medical staff! She is very special (as are all of your kids!). We're praying an opening will come in the Ronald McDonald house for you. Take care of yourselves and send our love to everyone. Lots of love being send from FL.
Heather and Jimbo

Kim Conn said...

We are so glad she is doing well so far...we've been thinking about you all and hope that she gets strong fast so they can get the ET tube out...thanks for the Gator picture at UM...what a cute picture!!! Looking forward to the next update!!!

Anonymous said...

Kyara: We knew you would go thru the surgery with flying colors! You are in our prayers constantly. This blog is wonderful to keep up with your progress. We love you. Uncle Bill and Aunt Joanne