Colon Study Done

The colon study was uneventful, well, sort of. The study itself was good. It showed that Kyara does not have an obstruction. She appears to have quite a bit of mucousy poo, which they believe she is having a hard time evacuating. They believe this could be due to the medications she is on, which is slowing down her gut function. So in essence, Kyara is constipated. I said the study was sort of uneventful, because she was given lasix about an hour before going down, so... she created quite a fountain! Lasix helps your kidneys produce more urine, and as we found out...it works! Kyara peed close to a liter of fluid in about 1 1/2 hours. We had to really watch her blood pressure and make sure it didn't go too low during this time, but all was good.

Other than the study, Kyara had a very quiet day. She slept from about 6:30 this morning until 6:30 tonight. I think she has her days and nights mixed up right now. Pop has stayed with her the last few nights and said she was up quite a bit last night. I am afraid she will be up again tonight, after all of the sleep she got today! Her muscle tone is looking much better. Her arms are not pulled up under her chin anymore, so that is good. You can tell how comfortable she is by the position of her arms. When she is upset or uncomfortable, she brings them up tight to her chest right under her chin, when relaxed, they rest on her hips. She is not able to straighten her arms out all the way, though, so that is something I am working on. Kyara's swelling has also decreased some. She is still swollen some, but she is starting to look like herself again. Her belly is also still distended and a little hard, but again, better than yesterday. She is softer than she was and not as distended.

I am hoping we can find a combination of medications that doesn't make her too sleepy during the day, but keep her comfortable. The meds need to not have a negative effect on her gut. We are leaving everything as it is until we get to Atlanta, though. We don't want to rock the boat when we are this close to leaving. Not only that, but the PM& R doctors seemed to have disappeared. After I refused to let them in on Thursday, they have not shown up again. I guess it doesn't matter much, we weren't planning to change any medications anyway.

I hope everyone has a Happy Easter tomorrow! I thank God for all of the blessings in our lives. As my mom reminded me tonight at dinner, we have come close to losing Kyara twice. Once with her initial ingestion, and again with the cardiac arrest. She is a tough girl. She takes longer to heal than most, but God has kept her with us. We are a very blessed family!