Today I met with Dan and the car seat dealer. We spent a good amount of time going over how to install the seat and then we put Kyara in it and made sure it fit her. This carseat is a monster! It is huge, but it fits Kyara well. She look comfortable in it, and that is the most important thing. The carseat has a head rest that will stop her head from going side to side and a cap that she will wear that velcros to the head rest to stop her head from slumping forward. Otherwise, it really looks like a regular carseat on steriods!
Dan also worked some with Kyara today. He was pleased with her head control. She is working on holding her head up. Today his comment was..."This is the best head control I have seen out of her yet." Now that doesn't mean she is able to hold her head up all the time, but for 15-20 seconds she was holding it up like a champ! We are working on this with Kyara alot. Once she gets head control, we can work on sitting up. One step at a time.
Last night Kyara had the best sleep she has had in a week and half. She slept from 9:30pm-3:00am(woke up because of poop), then got her medicine and slept from 3:30am-6:00am (more poop!), then went back to sleep until 9am! That was close to 11 hours of sleep! YES!! I hope she does the same tonight.
Also, Kyara got her NG tube out today! We may put one back in for her flight home, the doctors want to make sure her stomach stays decompressed, but that is still up in the air. Speaking of coming home...that is also up in the air. We know we have been accepted at Scottish Rite, the people at Michigan have done their part in getting her ready, now we are just waiting for Scottish Rite to finish their paperwork, gathering all the information to make the transition smooth, and to figure out transportation, and at that point we will be getting home. We had a target date of this Friday, that doesn't look like it will happen. It is now looking like early to mid next week. I am bummed to be staying over the weekend. I was dreaming of going to see Skylar play soccer on Saturday, but the time will come.
I thank God for a good day today. I am thankful to have gotten Kyara's carseat and that it all fits her. God has blessed us today with small steps towards Kyara's recovery. Thank you for keeping Kyara in your prayers.
10 comments:
What amazing news...I know you have to be thrilled that Kyara has progressed enough to be planning going home. Lots of prayers and love! Lana
Oh, what wonderful news all around!! Sleep, a new ride, progress, and a homecoming!! We are very excited for you guys. We pray fro a very smooth transition for all!!
The Brandons
Genie, this is certainly all good news, and yes, we are all blessed in small ways that sometimes go overlooked... God has a plan, and it will reveal itself little by little... don't lose patience and keep the big picture in mind... even the longest journey begins with the first step. God bless and good night.
I can't wait to meet you and Kyara! I have followed your page for many months, day by day by day. I know you must be excited to be coming home!!
May God be with you and Kyara,
Melissa Trebuchon, Nanston Dental
So happy that you are close to heading home. Her own familiar surroundings of home, family and friends may help her out. Will pray for speedy paperwork and a safe flight home. Soon the RM house will be a faint memory. Have a great day!
I know you are looking forward to having the whole family home again. I hope it is soon!
Molly McCrory Camp
love and prayers from carrollton,ga.
Oh Yipee! I know you will all be so glad to be back home. You will all remain in our prayers no matter where you are but to be back in your own home will be so wonderful for you all!
Seek his will and it will be done! Great news. See you in rainy ATL! Be safe and confident,
Much Respect,
The Vaughn's
That is great news, hopefully you all will be able to come home soon. That will be good, more help here from everybody. Stephanie is playing soccer too at Cannon soccer, if Skylar is playing there maybe they will eventually play each other if it would stop raining. That would be nice. Lots of love and prayers.
Ivette
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