This weekend has been...good. Kyara has been sleeping most of the weekend. That is great! She needs the rest and she is finally getting some. She has been sleeping from around 7pm-3am and then again from 8am-11am. This is ALOT of sleep compared to what she has been doing. She is also drifting in and out of sleep throughout the day. Even when she is awake, she has been much more calm than last week.
She is also pooping and farting (passing gas, pooting, shaking her britches, kicking the tires, relieving the pressure, fluffing, tooting, and on and on...). Maybe she is pooping too much? I think she has gone 6 times in the last day. We are a little concerned with the appearance of the poop, but as she is getting more tube feeds and less TPN (nutrition through her IV), it should get better. Kyara does NOT like having a dirty diaper. She gets very agitated and complains before going, and after she finishes. I would love to try to get her on a potty when she starts moaning and see if she will go on it. Of course, we have some time before we will be able to do that. She has way too much tone and no control of her posture, so sitting on a potty would be very difficult.
Her complaining makes me think that she remembers being potty trained and she doesn't like the way it feels to go in her pants.
My dad got in last night. He is going to stay until Tuesday or Wednesday, so he is going to be a huge help. I am glad that he got in without any troubles. Gunars and Skylar are still here (Sunday night). We got a call from Delta announcing the cancellation of their flight tonight. They have seats on a flight tomorrow night, so I am enjoying them being here an extra day. I understand there is a HUGE snowstorm at home. When I told the nurses that people were rushing to the grocery store for milk and bread, they laughed. 2-4 inches up here is a joke. But here is the funny thing....there is NO SNOW in Michigan!! How is it that there is snow in Georgia and none up here? It has all melted! Funny...
13 comments:
I am so proud of the progress today! She is definatley a trooper, I check on you every day. You are in my prayers everyday....
God bless,
Lori Gray
MS
What great news..I know you have to be excited about all the progress. Caitlin has told me how jealous she is about the snow. Lots of love and prayers. Lana, Russell, Caitlin, Savannah and Alexander
Tell your nurses they'll get a kick out of this....school is cancelled. Tell Skylar to enjoy her "snow day"!
Love to hear of Kyara's sleeping and "other" activities!
Love to all!!!
Marcia Fields
Glad to hear she is getting her well needed rest! Keep plugging along and there isn't a day that goes by we don't think of you all!
Lots of love-
The Campbells
We like the news, progress. We got about 3 inches of snow, temp 36 now so it is melting. You are in our prayers every day.
Barry and Linda
Great news. Sorry yall missed the storm of the century here in GA...2 inches and the city shuts down! So happy that you all had a good weekend and progress is constant. Keep it up!
The Vaughn's
Finally, some good sleep!!! This is going to help her out so much. Enjoy your extra night together and we will continue to pray for more rest, progress and healing for Kyara. She is a super trooper!
God Bless you all,
The Henley's
Wonderful news!! Hopefully this week brings more rest and more forward prgress!! Enjoy your extra time together!! We are all enjoying our snow day!!
The Brandons
It is so nice to hear that she is finally SLEEPING!! We have been praying fervently for that one. It is also great to hear how she is communicating more and more with you, she is a pooper trooper!! Can't wait to hear about all the great things she does this week in PT/OT now that she is good and rested. Enjoy your time with Gunnars and Skylar.
The Lopers
Soooooooooooo glad she is getting some sleep! SNOW! Can you believe it?? It has been beautiful--of course, I love a snow day off! Glad your family is with you. Ya'll are blessed with each other. Love you,
Wink
Getting finally some sleep is wonderful news.
Yesterday was a very nice white day here at home, I am sure the girls would had liked very much.
Big kisses to all of you
Love
Great to hear she is making some progress! Keep it up Kyara! Hope you guys are doing OK!
Kyara, I check on you everyday. I'm so proud of the progress you are making keep up the great work. You are in my prayers. I miss you! love to all Misty Evans
Post a Comment