Gunars got back in town last night and has been spending good quality time with Kyara. Skylar stayed in Georgia with Uncle Allen, Aunt Missy, Curtis, Ansley, Zoe, and Preston. I think Uncle Allen and Aunt Missy have their hands full! Thank you guys so much!
Yesterday was a bit crazy here. The ceiling collapsed in the rooms close to us. It was like a Grey's Anatomy episode where the ceiling collapsed in the Operating Room. We were moved to a PICU 2 as a precaution. I liked the new area, but we didn't get to stay. It had lots of windows and lots of sunlight. While there we stood Kyara up in the bed, Bunny took pictures. We used the head of the bed as a base to lean her on. It seemed to work pretty good. After 5-10 minutes her ankles started to bend inwards, though and we brought her back down. After a while, the charge nurse decided it was safe for us the return to the PICU, so off we went. Being moved back to the regular PICU was like going back to a dungeon. :(
Today Kyara has spent most of the day sleeping. The medicine she is on makes her very drowsy. We are trying to find a good dose that relaxes her muscle tone, but doesn't knock her out. This is a new obstacle to hurdle. We took Kyara to the cafeteria and outside today. A change in scenery was good. There's nothing like fresh air! This past week Kyara has seemed more aware of her environment and she is holding her head up better. She is still sporadic in when she holds it up, but the length of time and her doing it with less tone, is getting better.
We are anticipating getting back to Georgia sometime soon. It is in the works, now we just need the paperwork done, the insurance to approve the move, transportation to be settled, the stars to line up, etc. and then out of here we go! I will keep you updated on the progress.
Thank you for all of the wonderful prayers, warm wishes, care packages, etc. If I have not written personal thank you notes, I would like to apologize. I have gotten quite a bit crazy with everything here and I have fallen down on the job some. We greatly appreciate everything you are doing for us and do not want to slack on the thank you's. Unfortunately, I have misplaced some of the return address and I am not sure where to send notes. May God bless you all.
Yesterday was a bit crazy here. The ceiling collapsed in the rooms close to us. It was like a Grey's Anatomy episode where the ceiling collapsed in the Operating Room. We were moved to a PICU 2 as a precaution. I liked the new area, but we didn't get to stay. It had lots of windows and lots of sunlight. While there we stood Kyara up in the bed, Bunny took pictures. We used the head of the bed as a base to lean her on. It seemed to work pretty good. After 5-10 minutes her ankles started to bend inwards, though and we brought her back down. After a while, the charge nurse decided it was safe for us the return to the PICU, so off we went. Being moved back to the regular PICU was like going back to a dungeon. :(
Today Kyara has spent most of the day sleeping. The medicine she is on makes her very drowsy. We are trying to find a good dose that relaxes her muscle tone, but doesn't knock her out. This is a new obstacle to hurdle. We took Kyara to the cafeteria and outside today. A change in scenery was good. There's nothing like fresh air! This past week Kyara has seemed more aware of her environment and she is holding her head up better. She is still sporadic in when she holds it up, but the length of time and her doing it with less tone, is getting better.
We are anticipating getting back to Georgia sometime soon. It is in the works, now we just need the paperwork done, the insurance to approve the move, transportation to be settled, the stars to line up, etc. and then out of here we go! I will keep you updated on the progress.
Thank you for all of the wonderful prayers, warm wishes, care packages, etc. If I have not written personal thank you notes, I would like to apologize. I have gotten quite a bit crazy with everything here and I have fallen down on the job some. We greatly appreciate everything you are doing for us and do not want to slack on the thank you's. Unfortunately, I have misplaced some of the return address and I am not sure where to send notes. May God bless you all.
7 comments:
Genie, I love the picture! It is so wonderful to see Kyara in a different position!! I am giddy with excitement at the thought of you guys coming home...hurry! We can't wait to hug you all!!
We have had so much rain these past two days. I am sure Skylar's excitement of coming to our house is wearing thin as we have been cooped up since she got here! We even set the bouncy up in the family room to let the kids burn off some energy! Hopefully tomorrow will bring drier weather and we can get outside!
XOXO to all of you! We'll keep the prayers coming!
Missy and the fam
As so many others, I have been following Kyara's progress. The prayer list is growing as the word travels from concerned person to concerned person. I know we can't imagine just how excited ya'll will be to get back here to Georgia! I want to thank you for the updates that you take the time to post. None of us can imagine what you, Kyara, & the rest of your family have gone through. I personally am in awe of your strength. I know your continued prayers are for strength and healing, as I'm sure everyone is praying for that also. Welcome home - very - very soon!
Take care & we all look forward to the updates, as slowly but surely Kyara is improving!
God bless you & your family,
One of your "hometown" fans
Genie-what a beautiful sight, to see Kyara standing on her own feet!!!! I know the bed is helping support her, but this looks awesome. She will someday stand, walk and run of her own free will. God is awesome and He is slowly revealing the work He is doing in Kyara. She has touched family, friends and even strangers with her grit and determination. I am sure she has won at least one person over to the Lord during this process, this pleases Him and His rewards will be great.
We pray for pathways, continued healing and now for a speedy return back home!!!!!
Take care and safe travels to Gunars
The Henleys
PS Let us know if there is anything we can do on this end to help with the process. We would love to help!
Thinking about you guys and praying for you everyday! Can't wait to see you are back in Georgia!
In Him,
Adrienne Maples
WRES
Genie,
We all know how much you all want to be in Georgia and not just "have Georgia on your mind"! We want you home as well!! LOVE is our HOPE word today! We witness the love that your family has for each other each day, and we hope that you feel all of the love we have for each of you. Hug Peggy! We love you, Wink
We are very excited to see Kyara standing up. She is such a strong little angel. We will continue to pray for her healing and for you guys to get to come home. We miss you so much!
Please let us know if you have any needs. We are in the process of putting together a few things to send. If there is anything you think of that might be helpful, please call or send an e-mail.
We love you guys!
Laurie and Josette
I am so glad that you had a agood weekend. I am thrilled that you guys are going back to GA. Do us a favor and send your warm sunny weather here!!! I will miss you guys so muchm but I truly am so happy you get to go home. Here is Ethin's Care page! http://www.carepages.com/carepages/EthinspageKeep us posted and you will always be in my prayers and thoughts, Jessica
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