Air Outside the Colon

Kyara has air outside her colon. The doctors are not sure where it came from, but there it is. Right now Kyara is asymptomatic, and I hope that is stays that way. The hope is that is will just be reabsorbed by her body and not cause any problems. In the meanwhile, she is staying on the Pediatric Surgery service and her tube feeds have been stopped. She is still on TPN, which gives her nurtition through her veins. This is not good for long term, though, because it is hard on the liver. We need for her GI tract to start working properly. Her colon is also very dilated and holding air. Dr. Tony (Kyara used to have a crush on him when we were here in the fall) tried a rectal tube to help relieve her gas, but it did not release much. I was expecting it to sound like a balloon deflating...no such luck. One little squeak, that's it.

In rehab, Mr. Dan got out a carseat like the one we will have to get for Kyara. It is specialized for kids with disabilities. It even has the option for a cap that velcros to the headrest that the child would wear to help keep their head up. I hope Kyara will be able to hold her head up without having to use that. We will put Kyara in it tomorrow or later this week and test it out. We still have a while before Kyara will be ready to come home, but it is good to get the ball rolling and getting things ready for her.

Kyara is having a harder time with sleep again. She is sleeping earlier in the night, but up by 12:00am and storming from 3-7:30am. The new doctors have adjusted her meds some, so I hope she has a more peaceful night tonight. She is also going back to sleep at 8:00am. This is not going over very well... PT/OT is at 9:00! Kyara is sleeping right through it! Mr. Dan and Donna have Kyara sitting up on a ball (Dan holding her, of course) and she is sleeping right through everything. I wish she would sleep like that at night!!

My prayers are for recovery. More specifically, I pray Kyara will begin to respond more. The response we get come and go so quickly. She has not been mouthing "HI" much anymore. I pray each day she will recover a little more and that I will be able to see the differences. Sometimes I think we just don't recognize God's work and signs. I look forward to seeing Kyara smile again, and having her hug me again. I also pray for sleep at night for Kyara. I still believe that until she has a couple of good nights' sleep we will not have a good baseline for her. She also needs to have this colon issue resolved. Please, God, help this resolve.