Good news...
Kyara had a more peaceful day. She did not sweat like she has for the past few weeks. She also did not storm near as much. She really seemed to be calmer today than she has been in a LONG time Gunars got in last night and got to see Kyara this morning for a little bit before coming back to the RMH to work. He was excited to see her mouth "hi." I was thrilled for him to see it!
The Bad...
Kyara's Picc line accidently got pulled out of place today. We will have to either place an peripheral IV or have them replace the Picc tomorrow. I don't know what they are going to decide to do. Right now she is only using it to get some fluids. It has been hep-locked (heprin to keep the lines working) for a week and half, and they weren't using it at all, so I am not sure what they are going to decide to do. It is good to have access in case the doctors need it.
The Messy...
Kyara is having some poop problems. She has a blockage and is "constipated" but she also has the runs. Basically, she is able to squeeze out the liquid part of poop, but not any solids, so the solids have backed up in her colon and become a problem. Her poor tummy was distended and hard. So today the nurse has been on a pooping mission. Kyara has had 3-4 enemas and 1 suppository to try to breakup the blockage and get things moving. Poor girl has swam in chocolate soup quite a few times today :) Our nurse, Jenny has been a trooper at cleaning Kyara up and working hard to get things moving!
Kyara skipped therapy today. The first sessions she was SLEEPING! We decided sleep was more important at this point, so we called Dan and Donna and cancelled. The second sessions fell at the same time at the poop party, so Dan and Donna came to Kyara's bedside and did some stretching with her. They were good sports about it. Dan also left a mat and a ball that we use during therapy sessions so that Gunars and I can work with Kyara over the weekend. Mom is harder than Dan and Donna, so...sorry Kyara!
Skylar finished her time here with Mrs. Carol, the school teacher. She has done great and Mrs. Carol has been fantastic with Skylar. Kassey has decided that walking is not for her, she would prefer to RUN! Oh. My. Goodness.
Luz Estela (Gunars' mom) is leaving tomorrow morning. She has be a great help here and we will miss her! Tomorrow it is also forcast to snow 4-6 inches. I pray Luz Estela gets home safely. Her plane leaves at 12:00 pm, so please keep her travels in mind.
3 comments:
Hi Genie and Gunars,
We are glad that all of you are together this weekend. With the exception of the "messy" and pic line problem, Kyara definitely is improving. Many more positive things will continue to happen. We expect and believe it! Skylar is a trooper and Kassey has it in her genes to run before walking! Actually, all three girls do! We miss you all and look forward to your visits with us soon. We love you guys! Spokane
Here is another devotion that I thought you might identify with: Susan Loper
"Give Us This Day Our Daily Bread."
by Max Lucado
What a statement of trust! Whatever you want me to have is all I want. Some days the plate runs over. God keeps bringing out more food and we keep loosening our belt. A promotion. A privilege. A friendship. A gift. A lifetime of grace. An eternity of joy. There are times when we literally push ourselves back from the table, amazed at God's kindness. "You serve me a six-course dinner right in front of my enemies. You revive my drooping head; my cup fills with blessing" (Ps. 23:5 MSG).
And then there are those days when, well, when we have to eat our broccoli. Our daily bread could be tears or sorrow or discipline. Our portion may include adversity as well as opportunity.
This verse was on my mind last night during family devotions. I called my daughters to the table and set a plate in front of each. In the center of the table I placed a collection of food: some fruit, some raw vegetables and some Oreo cookies. "Every day," I explained, "God prepares for us a plate of experiences. What kind of plate do you most enjoy?"
The answer was easy. Sara put three cookies on her plate. Some days are like that, aren't they? Some days are "three cookie days." Many are not. Sometimes our plate has nothing but vegetables--twenty-four hours of celery, carrots, and squash. Apparently God knows we need some strength, and though the portion may be hard to swallow, isn't it for our own good? Most days, however, have a bit of it all. Vegetables, which are healthy but dull. Fruit, which tastes better and we enjoy. And even an Oreo, which does little for our nutrition, but a lot for our attitude.
All are important and all are from God.
The next time your plate has more broccoli than apple pie, remember who prepared the meal. And the next time your plate has a portion you find hard to swallow, talk to God about it. Jesus did. In the garden of Gethsemane his Father handed him a cup of suffering so sour, so vile, that Jesus handed it back to heaven. "My Father," he prayed, "if it is possible may this cup be taken from me. Yet not as I will, but as you will" (Matt. 26:39).
Even Jesus was given a portion he found hard to swallow. But with God's help, he did. And with God's help, you can too.
From
The Great House of God
© (Thomas Nelson Publishers, 2001) Max Lucado
So glad to see you in better spirits! And to know she is mouthing words? Now that is progress you can hang your cap on! Great to hear that she is sleeping better. Keep working hard. Remember, even if it is 2 steps forward and then 1 back, you will reach the finish line eventually. Prayers and well wishes!
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