I got to hold Kyara in my lap today for the first time. I cradled her like a baby and finally she fell asleep for an hour. It took some work to get her to sleep, but the girl MUST be exhausted. Last night they gave her valium and melatonin, she slowed down with her movements, and seemed calmer, but still did not sleep much. At 5:30 am she finally fell asleeep for an hour. So grand total for the past 24 hours is 2 hours of sleep. The doctors are going to try something new tonight in hopes of more snoozing.Dan came in today and cast Kyara's legs/ankles. She was wearing boots, but because her ankle muscles were still in contractions, Dan decided to make custom splints. The cast will come off tomorrow. We are still waiting to hear about the Botox injections. If they decide to do it, then Dan will recast after the shots.
Kyara also had another EEG today. We were praying for more brain activity, but this was not the case. It did show that she is not having seizures, thank God, but her brain wave activity was actually a little worse. The neurologist said they are not taking that to mean anything, she could have been in a sleep cycle, she could have been exhausted (4 days with no sleep will do that to a person!), it could be medication effect, etc. So, although we would have loved to see improvements, we are taking the EEG with a grain of salt.
23 comments:
What a sweet moment to be able to hold Kyara in your arms!! I know that felt wonderful! We continue to pray for rest and peace for you all and a complete recovery for Kyara!
The Brandons
Genie and Kyara, What a sweet picture of you two. We hope you (Kyara) get the much needed sleep you need sweet girl. Thanks Genie for sharing that picture with us. That is a very special moment and I really enjoyed seeing that picture. Hang in there Mom you are doing what you need to do for everyone. Our prayers are still for our sweet Kyara to heal back to her old self. We know she can do it.
Skylar you are a great big sister to be there beside Kyara to let her know how everyone is waiting for her to get better.
Love to all!
Mrs. Carlisle and Mrs. Laurie
I love the picture of you holding your sweet girl. We will pray for some much needed sleep for all of you. Love to you all! Marcia and the Fields Family
May God hold you in His loving arms.
We are still following the blog. Thank you for leaving consistent and detailed updates. It really helps me know what to pray for. I know that Kyara must have felt your comfort when you held her and that is why she was able to rest for a while.
Genie, I really admire you as an individual and mother. You are awesome and have incredible strength. Continue to trust God! He is holding you and Kyara.
We are praying for good news each day and are encouraged when you write about each improvement!
Sincerely,
The Sisk Family
Jon, Hollie, EmmaLaine, and Samuel
Thanks for these updates. If she's this lovable just from reading a few words, you must love her SO much. The prayers of many are with you.
Praying for you all during these most difficult days. Your faith in 'The Great Physician' is amazing & we too pray for your precious angel to recover quickly & completely. Wishing you peaceful sleep!
Nina Boynton
Aw, I know you were loving getting to hold Kyara! Lil' miss just needed her mommy to hold her so she could get some rest. :)
I'll keep praying...keep your chin up!
Kate
Kyara looks so peaceful in your arms, Genie. What a joyous moment it must have been for you (and for everyone else to see!). We continue to pray and wait for little improvements to come your way day by day.
Lots of love,
Michelle and Eddy
Loved the picture of you and Kyara. I know it must have felt great to hold her and that is probably what relaxed her and allowed her to sleep, smelling her mommy and listening to your heart beat. More prayers headed your way.
Lots of love,
Ivette
Hi. I am a friend of "Mrs. Carlisle," and she told me about you this weekend. I just want you to know I am praying for you and your family. Kyara is a precious little fighter, and it is so obvious she is surrounded by such love. I will continue to follow your story, and pray for you all daily.
We are all praying for that miracle right along with you. We probably will never know what God's plan was in all this, but you just have to keep trusting that he does have a plan. You all are in my prayers.
Sue Eutermoser
Genie,
What a sweet photo of you and Kyara, and your post from yesterday left me in tears! We hope your sweet little girl gets better rest tonight so that she can surprise you with improvements tomorrow! Keeping your family dear to our heart and sending many prayers,
The Hagerotts
What a sweet picture of you and sweet Kyara! God is watching over her and your family! I continue to pray for her. I hope she get more rest and that her sleep cycle returns soon. Continued prayers to you!
What a great shot of you holding your sweet Kyara! The sound of your heart beating next to her ears helped her sleep knowing you were right with her. Your arms kept her safe and she rested!
Genie, thanks so much for keeping the blog to help us all know whats going on with your wonderful family. Prayers for you all every single day! Please give Kyara a high five from Sensei and Skylar too!
It must have been wonderful to hold her! Thank you for keeping us updated on her progress. We're continuing to pray daily for Kyara and all of you to feel God's loving arms around you.
Love--Martha, Brian, and Ben
That is such an awesome picture to see you holding your little girl. Thank you for sharing that with us. Keep holding your head up high, I believe Kyara is on her way to a full recovery. I'm still praying for Kyara and your family everyday. Take care!
Genie, that picture is precious... I am sure that you relished that moment and will always carry it with you. Kyara must be exhausted and cranky poor girl... I hope that she does get some rest soon - the body needs rest to heal... I hope you too are getting some rest. Stay positive... hope is a very powerful thing so hold on to it. We are certain that with all the prayers and people around the world thinking of you and your family, Kyara will get better.
Love, Tina, Carlos & Nico
I love the picture of you and Kyara. I know it felt wonderful to be able to hold her. She looks relaxed and at peace. I pray she will begin to sleep better and begin making more defined improvements in the near future. You said you have a good feeling about the new Dr. I think that is a sign from God, that she is in the right hands. Maybe he is 'the' Dr. God has prepared to handle this situation. We continue to hope and pray for a miracle, right along with you. Tell Skylar we miss her and hope to hear from her soon.
Love to you all,
The Henley's
Keep your trust in God, you're in our prayers.
The Robinson Family
So glad you got to hold your baby. Praying for you every day,
Jess Hernandez
Great photo! Keep your heads up and believe she is going to come out of this. What a big sister Skylar is watching over her lil sister!
Love you all-
The Campbells
I'm praying for Kyara and your family. God bless you.
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