Kyara had a gastric transposition surgery to remove her esophagus and pull up her stomach on Monday, November 3, 2008. She went into cardiac arrest during an outpatient procedure on January 21, 2009. Due to the arrest, Kyara suffered a severe anoxic brain injury. Kyara grew her angel wings on March 19, 2010 and is now playing with the angels.
Kyara Dzenis
Thursday, January 22, 2009
Waiting Game
Here is some background about what happened yesterday as we understand it. Kyara went in for an out-patient dilatation. She had no problems going to sleep and was in a great mood yesterday morning. The doctors put a guide wire into what they thought was her stomach under x-ray. They were then planning to use the scope to visualize her stomach. When they use the scope they have to push air in front of it to "push" the tissue away from the camera so that they can see. Instead of being in the stomach, they were in the mediastinal space which houses the heart, lungs, and veins that bring blood back to the heart. Veins are very flimsy, not like arteries, which are muscular, so when they pushed the air for the scope, it collapsed the veins and did not allow blood to enter the heart. This caused Kyara to go into cardiac arrest. The doctors were right there and worked very hard on Kyara for close to 45 minutes. Thank God, they were able to save her life. Gunars and Skylar arrived yesterday afternoon. We are atleast all together.
The biggest concern right now is Kyara's brain. She was with low oxygen (60%) for about 45 minutes yesterday. That is not good for a child. She was on the operating table in a room full of Doctors and within seconds everybody was working on her. The big question mark is how did this affect her brain. She had a lot of medication that could mask any problems and/or cause the body to act in a strange way. Right now she is unresponsive in a coma-like state. No one knows how she will react and whether the medications they gave yesterday are still causing this coma appearance or whether it is due to brain injury. She is not responding to pain; she has broken ribs from the CPR and even when the doctors are pressing on them, Kyara is not responding.
The doctors did an EEG on Kyara's brain earlier, but we won't have results until later today. She is also getting an MRI done at 5:00 today. The doctors said that these test may not tell us anything, but will be a baseline for follow-up studies.
We have a lot of questions and there are alot of unknowns, but we are told that we have to wait it out. I am very sad, frustrated, thankful (that she is still with us), and angry. I want to know why things like this happen to Kyara. She is a strong girl, but enough is enough!
Thank you for continuing to pray for Kyara's recovery. Kyara needs all the help she can get. We will post more when we know more.
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31 comments:
Hang in there Genie. You do an awesome job with all this, and everyone admires your strength. We are thinking positive, and believing. Let us know if we can do anything.
Matt
Oh Genie,
I'm so sorry to hear this. We're You HAVE to keep believing that its all going to be ok. Draw what strength you can from everyone's support and just know that god has a plan. We love you guys!!
Heather and Jimbo
Words cannot express what I am feeling for you guys, but please know that we are praying hard!! God is amazing and can and will do amazing things!!
The Brandons
Keep up the strong fight, Kyara. Everyone knows what a strong fighter you are. We all are thinking about everyone.
Beth
Genie,
We continue to pray here for all of you. We want to be right there with you so much! It is great knowing you are all together. Kyara has amazed us all so many times before with the strength she has had to persevere. We know God is the source of her strength, and He holds her right now in the palm of His hand. That is all that makes this distance we feel from Kyara bearable. She couldn't be in more capable hands!
We love you all!
Josette and Laurie
We are all praying for you and Kyara and your family here at the GI office...we love you all so much and please know that you are in our thoughts and prayers.
Genie - my heart and my prayers are with you. Stay strong. Words can not express the way I am feeling for you all. Kyara - we all love you and hope for good things. Remember that God is with you.
Love,Marcia Fields
Genie and Gunars we all love your precious family. God loves Kyara more than we do, more than we can.
Cling to Him now and do not lose hope! We are all praying for divine intervention, something that is beyond our comprehension. We claim victory over this entire situation and we will pray God will show His power and mercy for His precious Kyara.
We are continuing to hold you all in our prayers. We'll keep checking in to see how Kyara progresses. love, clara, chip, calder and livvy
Simply...you are in our thoughts and prayers!
Love,
Lorri and Megan
I am praying for you to have strength through this and for Kyara to come back to you whole and well. Lots of love and prayers
The Lanes
Gavin and I are praying every day for Kyara, as well as for your family!! Kyara is an amazing fighter and GOD is an incredible healer!! Just know that prayers continue to be sent your way........
Prayers for all of you to get through this.. Kyara stay strong and fight hard sweetie as we know you are!
Love the Cambas Family
Genie and Janis:
Guys... I wish there was something I could say to really make you feel better, feel positive.. and believe that this will all blow over quickly. I don't even have the words at this point. I do believe that God is watching over her... and He will protect her. Kyara has a purpose here and He is going to make sure she makes it through and comes out stronger than ever. I hope that you guys stay strong...We love you and we are praying for you at every moment. Love, Tina & Carlos
Gunnars, Genie, Skylar, Cassey and Kyara, you are all in my deepest prayers. I know you are all strong and will get through this. Hugs, positive thinking and prayers will help us all. Thank you so very much for keeping us all posted - we know that is not your number one concern, but REALLY appreciate you including all those that are praying. I don't know what else to say, but know that the prayer hotline is burning strong! Love to all,
Michelle, Mitchell, Matthew, and Michayla
I am so sorry, and I am praying for you and your family!
Being a nurse I can sympathize with you and what you are going through. I am so sorry that you and your family are having to deal with this. Please know that you may be a great distance, but you are very close in thoughts and prayers. I hope to hear great things soon.
love,
Christa Eberhardt Collins
Hi Janis,
I wanted to let you know that I'm close to your family and praying for your baby all the way from Italy.
Valeria
(an ECA classmate)
With all my love for you at this difficult time. My prayers and thoughts are for you every minute.
Let's keep our hope very high and God will help Kyara to the recovery soon.
Hey Guys,
Just wanted to let you know that we're still praying for Kyara. We've been wanting to jump in the car and drive up there since we read all that's happened. I want you guys both to know that if you need anything, we're here and we'll be happy to do anything you need. I cannot imagine what you're feeling, but I do know that you have to keep thinking and praying for the best. I pray for Kyara's healing, peace, and comfort. Its been a rough 2 years, and you all, especially, Kyara, have remained so strong. Don't let go of that strength. We love you guys and are praying for you all the time. Gracie has said a dozen prayers for Kyara and wants to see her back home for good. We will see her back home for good.
Allison, Orlando & Gracie
This is the confidence we have in approaching God: that if we ask anything according to His will, He hears us. And if we know that He hears us--whatever we ask--we know that we have what we have asked of him. 1 John 5:14-15
Know that our thoughts and prayers are with all of you.
The Hannons
The ultimate physician is in charge and will take care of Kyara and you all. Have faith and do not let your faith waiver. Your army of prayer is stronger than you know. God is in control!
Love,
The Vaughn's
Genie, please know that our thoughts and prayers are with you and your family at this difficult time.Stay strong!We love you Kyara!Your d/s friends at choa.
WellSpring Church in Senoia is praying for you. We are praying the Holy Spirit gives you peace and that God is holding her and healing her in the palm of his hand.
I so hate to see a child and her family in pain. My family group and I prayed for Kyara this evening and prayers for her healing continue to weigh on my heart.
You are the strongest woman I've ever known in my life. Gunars and the rest of your family is blessed to have someone like you holding it all together during this difficult time. May Kyara pull through unscathed. We will be praying for her safe keeping.
Eddy
We are pulling for you Kyara. Hang in there Genie and Gunars. We love you all dearly and believe she is going to persevere!
Love Vic,Kerri,Ty and Elyse
You are all in our thoughts and prayers. Please take care of yourselves and each other. We will be anxiously awaiting your next update and praying for positive news.
The Henleys
We are so sorry to hear this news... Kyara has shown indomitable strength that will help her get through this! You are all in our thoughts and prayers...
Stephanie Dirring Scaliatine
This angel and your family have been added to a list of dedicated and faithful prayer warriors so there are even more petitions being lifted to our most Holy and Merciful God every minute of every hour of every day. Jesus is the great physician and our Lord and Savior. God is in total control and His Will is perfect. May you all feel His presence and be blessed by His love and the power of His healing hands. God Bless you Real Good,
Kathy McAleer, Zebulon, GA
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